The above photos are of an unidentified preemie in an NICU, and of me at age 8.
I was born at approximately 28 weeks gestation in 1958. I weighed 2 lbs. 3 oz. (1000 grams) and was 12” long. The doctors told my parents I would die. When I didn’t die, they told them I would be blind and brain damaged. However, I survived and I wasn’t blind and didn’t appear to be brain damaged. Everyone thought I was fine. Yes, I was small. Yes, I got sick a lot. But I did well in school and eventually became a doctor. All appeared to be well.
However, I had a lot of challenges that weren’t obvious. I had trouble making friends. I was anxious and shy. I had trouble sleeping. I would suddenly get depressed for no apparent reason. I thought these were personality flaws or something.
I started writing a memoir and in a class a teacher asked me if something had been researched by psychologists. I said I didn’t think so but I would check. When I checked I discovered a lot of research has been done and some of my difficulties are common in preemies.
I want to share this information with preemies and families of preemies so we can experience understanding and healing. We are survivors and we can adapt and grow. I want to celebrate our resilience as well.
Welcome to my blog. I’ll share more of my story. Feel free to comment and share yours!
Karin, congratulations on your first entry for this blog and I’m looking forward to the rest of your story. I was born at the start of 29 weeks, one of identical twins in Kingston upon Thames, in southwest London, England on December 22 1981. I weighed 2lbs 6oz and my birth left me with spastic quadriplegic cerebral palsy and hydrocephalus for which I require an electric wheelchair and strong prescription glasses as well a VP shunt. I have about 15% of residual vision with my glasses but am classified as blind and have eyesight problems related to cerebral palsy (squint and nystagmus as well as hemianopia). Good luck with your blog entries.
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Thanks, Katherine. Each of us has a different story and they all deserve to be honored.
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Yes they do
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